Friday, September 28, 2012

Braxton's Test Results

Surprisingly there was a message last night from the endocrinologist about Braxton's test, I think that is the fastest any doctor has gotten back to us. 

Even though the results came back normal, we still don't have answers and might not for a few years.  She said they talked to the neurologist and he does believe Braxton has a cyst on his pituitary.  As of now based on the blood test results the cyst isn't effecting his pituitary gland.  Due to his age they don't want to do a repeat MRI to take a look at the cyst.  Instead they will wait for at least a year and then reexamine him, unless some symptoms occur before then.  The plan is to wait until he is at least 4 then do another MRI scan. 

Monday, September 24, 2012

Braxton's Appointment

I feel like the only thing I have written about lately is doctor appointments, well today was finally Braxton's endocrinologist appointment.  They look all his measurements and of course he is still in the 90% for height and weight.  The first time they measured him he was only at 50% so I told the doctor that he is usually at 90% so they remeasured and of course he was at 90%.

I guess things went good, it was a standard new patient appointment so we won't find anything out until the bloodwork comes back.  He was referred by his doctor after I brought up the cyst found on his pituitary gland.  The endocrinologist, ordered bloodwork for all pituitary hormones along with a urine test.  He did great with getting his blood drawn but the urine test was a little difficult.  They had to put a bag on him since he isn't potty trained, well he wouldn't go so we ended up leaving.  By the time we got home he had peed but instead of all the pee staying in the bag some ended up all over his shorts.  Luckly there was enough in the bag that I didn't have to put another bag on him.

The endocrinologist is also going to send the MRI to neuro to have them reread the MRI.  If they believe that the finding looks like a cyst then she will order a new MRI to see if there has been any change in the cyst. 

The only area of concern she has at this time is the size of his scrotum, she believe it looks a little underdeveloped.  She said that can be a cause of the pituitary gland and by looking at it, it looks as if the actual testicles don't descend very often.  Of course at this age it really doesn't have any effect on him but she mentioned having urology take a look at it. 

We should hear back in the next few weeks, so just keep him in your prayers.

On a lighter note, the FSU game was great on Saturday.  Nathan, Matt, and I all went while Braxton and Liam stayed with my friend, Lisa, who still lives in Tallahassee.  I love those 8 o'clock games but the drive home is always a killer.

Thursday, September 20, 2012

Open House

Liam had open house last night, which meant I was able to go see what he has been doing so far this year.  I am not sure if I have mentioned before that I have started to worry about Liam and letters.  He has been in school almost a month and they have been working on their vowels.  The only letter he can recognize is a U.  He can tell me what ever vowel makes but not that a "a" is an "a". 

Well last night after everything was done I went to talk to his teacher, Mrs. Coll, to set up a conference.  Surprisingly she told me not to worry about him he is one of her best students.  She said sometime in November they will start some reading and at that time she will have conferences.  She thinks Liam is a great student and a great listener.  If only he would listen at home.

Since Matt stayed home with Braxton and Nathan I took some video so Matt wouldn't miss it.  So here are a few of them for everyone to view.  As you can see he participates great.

After open house there was a bake sale, where we bought something for everyone in our family.  Guess what Liam picks for himself....a Florida Gator Pop Tart.  I told him his Dad is going to kill him.



Friday, September 14, 2012

Liam's Dr Appointment

Liam had his 6 month follow-up with Dr. George yesterday and after speaking with him Liam symptoms have envolved to a classic migrane pattern.  He recommended Liam to see a neurologist so he sent his information and we should be setting up his appointment sometime next week.  I am assuming it will take a few months to get in.  In the mean time he is still taking the cyproheptadine to manage his episodes.

Tomorrow is our first trip to Tallahassee for the season.  I am excited but not looking forward to dealing with Braxton.  He is at that age now where he isn't doing to sit still and with it being a noon game he will be missing his nap.  Hopefully during the 2.5 hour drive he will get some naptime in.

The room switch is still a success.  Braxton definitely enjoys his new bed and the freedom with it.  He was giving up some problem staying in the bed but the last couple of days I just had to remind him a few times before he fell asleep. 

Tuesday, September 4, 2012

Room move was a success

 

Well Saturday was the offical room move, Nathan moved to what was Braxton's nursery and Braxton moved in with Liam.  The first day Braxton stayed in his bed for both his nap and bedtime.  Then the second day he got up during naptime and played but was fine for bedtime.  Last night he got up during both naptime and bedtime.  After a few times of putting him back in his bed the did fine.  The funny thing is the first night at around midnight I heard him crying, went in his room and he was standing up stuck between the footboard and the mattress.  I think he was looking for his blanket and got his feet stuck.  Just had to push the mattress closer to the footboard and now we keep a pillow down there so it doesn't happen again.

Just have to get a few more things to buy for the walls, like shelves and pictures, and then some bigger baskets to go in the under part of his bed. 

I am really happy how things turned out and so is Nathan.

Saturday, September 1, 2012

New Era

Well there was big changes in the Glass household this week, the crib was officially taken down.  It wasn't our plan to take it out this soon but for Nathan's birthday we ordered him new bedroom furniture and was told it would be in in 6-8 weeks.  Two weeks later the furniture store called and said it was in, so this weekend I went to pick it up. 

I took down all the nursery furniture, Nathan is moving into Braxton's room and Braxton is moving in with Liam.  Matt and I took the bunk beds down and made them into two twin beds.  With Braxton loving to climb we were just to worried with him climbing up into the top bunk and falling.  The room is definitely very crowded but it will do for now.  We will probably change it back towards the beginning of next year.

We also bought Nathan a new bedding, Star Wars.  I am hopping to get the mattress tomorrow so that he will be able to sleep in his own room tomorrow night.

Nathan also had his first classical conversations class this week.  We brought donuts to his class for his birthday.  He also did his first oral presentation about his family and favorite things he like.  He was very nervous but ended up doing it.  They have to do a presentation each week and I think that is really good for him.



We also had Nathan's 7th birthday at O2B Kids.  They did rock wall climbing, made gak, and had gym time on the big trampoline.  The picked out an Angry Bird cake from Publix and we had pizza.  He really enjoyed himself and said it was his best party every.  Liam even wants to do his party there.